Sweet Saraya – The Blog » A mum with a camera, keeping her loved ones in the frame.

Monthly Archives: October 2013

Over seven years ago, our world was turned upside down when our then 2-year-old son was diagnosed with Duchenne, an incurable & terminal muscle-wasting disease. A few months after his diagnosis, whilst we were still in that dark place known as grief, we heard about a drug called PTC124. It was specifically for boys with […]

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