Sweet Saraya – The Blog » A mum with a camera, keeping her loved ones in the frame.

5 on 5 – April Blog Circle

Well, things have been busy since my last 5 on 5 post. Really busy.

We moved in February, but we are STILL settling in. We still have boxes to unpack, even though it’s 8 weeks since the move.

My incredible husband, along with 29 other equally amazing riders plus support crew, rode bicycles from Adelaide to Melbourne (1200km, or 750 miles) for the Tour Duchenne, to raise much needed funds for boys living with Duchenne Muscular Dystrophy. Duchenne is an incurable and 100% terminal muscle wasting disease, that sees boys in wheelchairs by the time they are 10 or so, and unable to even move their arms by their mid-late teens. And, since the heart and diaphragm are muscles, death is inevitable at a very early age. If you would like to donate, to help save my 9 year old son and many others like him, donations are still being accepted here. Look for my husband (Julian Thompson). This is the 3rd ride he has done for the Tour Duchenne, a fundraising ride we started back in 2008. To date, it has raised well over $2 million, which is definitely something my husband should be proud of (he has done most of the work over the years, with some very special helpers by his side).

I have been madly doing 3, yes THREE, photography workshops over the past 6 weeks. The latest one, Composition and Creativity, is kicking my butt!! It’s so hard! But I’m working through it and trying to push the creative boundaries with my latest images. These workshops keep me shooting a lot during the day, and up until after midnight each night. But I know it will be worth it in the long run when I’m a successful and sought-after photographer! LOL!

The kids have been getting ready for easter at school, and winding down to school holidays. We have had easter bonnet parades and concerts, rewards days, and parent teacher interviews. I can honestly say, I’m the world’s proudest mum! My kids are all doing amazingly well. My heart swells with pride when I think about all the wonderful things their teachers said. I’m a very lucky mummy.

Lastly, and most importantly, my James is starting on a drug trial. Some of you may remember a blog I wrote last year, called Hope Revisited, detailing my excitement and anxiety about this trial. We have waited 7 long years for this, ever since James was first diagnosed. It’s not a cure, by any means, but it will hopefully buy him some time. And some extra time is better than none at all. Anyway, last weekend James and I flew down to Sydney (we met Julian at the airport on his way home from the Tour Duchenne ride, and I gave him the kids and the car as a welcome home gift) to take part in the screening process. It turns out he’s eligible, so I was told yesterday that we are flying back to Sydney today for baseline testing and first dose of the drug (or placebo – we’ll not be told). I’m not getting my hopes up, but I’m still nervous and excited and terrified, and basically a complete emotional wreck! Please keep us in your thoughts, as this will be a year long trial (if all goes well), and it may even extend longer. James is so incredibly strong, so much stronger than I am. Even now, I’m crying just thinking about it.

And that’s me! For this month at least! I’ve included some images that I’ve taken over the past month. It should be five, but I’m hopeless at narrowing them down. I hope you enjoy them. And once you’re done, take a visit to my good friend Madison area photographer Jess Curkovic’s blog and see what she’s been up to! This blog circle is a very cool idea!!

Blog 6

Blog 3

Blog 10

Blog 1

Blog 4

Blog 11

Oh, and before I forget – check out the canvas I had delivered this month with my favourite 365 images from last year. I love it!

Blog 7

See you all next month!! Bye for now!

Sharyn xxx

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